Cérge

Life with a toddler is hard, life with a toddler with a disability with limited communication and mobility requires lots of planning and organisation.   

Today I introduced my little mate Jackson to Cérge at Aquapulse (Werribee, Melbourne). Jackson has a genetic disorder called IQSEC2, this means Jackson has intellectual and gross motor delays and associated Epilepsy.    

He is currently in a wheelchair, non-verbal and has frequent seizures, including where he will drop all of a sudden and sometimes he will stop breathing for a short period of time. This can be something we are use to and also something that can be terrifying depending on the situation.    

The anxiety associated is really hard, we need things to move fast and seamlessly to make things as best as possible for us as a family. We wanted to take Jackson to the Aquatic Centre but as you can imagine going swimming and the risk of a seizure is pretty scary.    

We used Cérge to let the staff at Aquapulse know we would like to get through as quickly as possible as his seizures can mean our trips are cut short. When the staff saw us in the entry they waved us through as quickly as possible, streamlining the front access, payment and wristbands.    

Having never been to Aquapulse before we were unaware of the need to organise lockers at the front desk, when we approached a staff member near the lockers for help she immediately retrieved the wristband we needed with no need to pay (despite them usually incurring a $2 fee!) to ensure quick access for us to get Jackson in the pool.    

This made a HUGE difference. Sometimes by the time we get in and organised it can be 20mins already gone. Making this process fast for us meant he was able to enjoy some time in the toddler pool, warm pool and had an absolute ball!    

All you ever needed any as a parent or caregiver is to see that smile, you know the one where their eyes glisten as their mouth moves as wide as it can. Where you know they are in utter excitement and ecstasy in that very moment.    

Seeing him made me soooo very happy. Everything in the world stops when your know your kid is happy.   

Jackson, being a tall 3 year old, is too big for standard baby change tables located in the All Gender Disabled and baby change stalls. The All Gender showers had a long bench down one side that had more than enough room for Jackson to lay down to get changed and plenty of room left in the stall for Jackson and even enough room to turn his wheelchair around.    

This trip was an absolute success for us, and we will be back! I can’t believe things can be soooo much easier just by having a staff member a step ahead.   
   
 

My life story is a long one and I don’t need to go into all the details, but I have been diabetic from aged 7. I had a sub arachnid haemorrhage (SAH) two years ago. I have an ABI which caused a stroke and I still don't have full mobility. Because of this I tire quickly when walking. I'm immune suppressed from a double transplant of kidney and pancreas therefore I get anxiety with big crowds. I won’t even start with the 3 emergency c sections. That’s for another day! Due to my immunity choosing adventures outside is always good for me, fresh air is a good medicine and less germs. However,I need to plan my days around my mobility and the access to a venue. I use a walker at times, big days I use my wheelchair. I make the most out of life and enjoy trying new things. It can just be exhausting trying to plan for support workers, access, people staring, people assuming. I also have trouble finding the right words and need people not to slowly talk to me like I’m stupid but also not talk at me at a million miles an hour. Just please have a conversation with me and give me a chance to respond. The world can be so fast and especially when trying to process new information. I saw the social media stories about Cérge and wasn’t sure whether it was for me. I checked it out online and asked some questions to get clarity from the Cérge team. I don’t like to stand out but I do like to get involved in life. I liked that Cérge seemed like a wide variety of people were using it and that you could literally just access the information and go about your day. I like that I’m in control. A support worker is completely different to using Cérge.Using Cérge is like being able to support myself fully because I have the information before I go and then use support for the things I’ve already decided I’d like to do not the other way around. I browsed through the different venues and started to feel very excited, there is an access guide and visual story plus a virtual tour. I get more information about the venue online than even being at the venue itself and missing stuff hahah I chose to visit Lone Pine Koala Sanctuary. What a day. Wow! I find it really hard when ppl look at you and see the disability and treat you different. Here I didn't feel that. I felt like everyone else enjoying the animals and the nature. Oh the nature! I saw so many koalas, saw a Tassie devil growl…. And yawn. They aren’t terrifying at all! Hehe I got to feed kangaroos and wallabies. The paths are awesome, heaps of tables for me to wheel up to! We’re cruising along and I saw the dingos being walked. I got to get up close and personal as the handler said it was good training for them to be around wheelchairs. The encounter with the Dingo was pure timing and chance. My lucky day :) Cérge, thank you! Lone Pine Koala Sanctuary, thank you. I am so full of adventure and life and feel excited about all the venues I can now try out and add to my life and LIVING! YES!

"As I have hereditary nerve deafness I would normally feel a little bit anxious about going to a brand new venue. I would normally feel frustrated if there was a communication barrier, or hopeless at having to rely on my husband to communicate for me.I have a two year old who is also Hard of Hearing and I want her to be able to learn how to communicate and see inclusion not frustration.In past experiences, if the first person I deal with has a thick accent, I can be there for ages with us trying to work each other out. It’s time consuming, frustrating and sometimes embarrassing for us both. I had put in my “Must Know” that I needed the customer service person to not have an accent please.When I arrived the first person who served me had an accent. I pointed to the sign and said Cérge app, and he immediately grabbed the Manager as they knew I was arriving and that was their plan.Other times, I normally just divert to my husband and let him talk for me which is irritating and not sustainable long term as I want to be able to communicate for myself.When we arrived at Stromlo Leisure Centre, the Manager, Bianca looked after us. She spoke clearly to me, introduced herself, showed us where to go, and went through what the different pools were.It was such a nice feeling to feel like we were looked after and not a bother. We were able to get what we needed seamlessly. Bianca was professional and kind.We would certainly normally visit these kinds of venues as we do take our daughter to swimming lessons and as mentioned above, if there is a communication barrier, I let my husband talk for the both of us instead.If Cérge was more available, it would certainly make things easier for our family, especially in areas where it's normally a noisy environment.We had a wonderful time at Stromlo and it is a great place, so many things to do! I felt quite happy leaving and would happily drive out of our way to come here again for the simple fact I felt included.I would love for Cérge to be in some local Canberra cafes, even the local clubs (Vikings, Southern Cross Club, etc) that would make so much difference to me and my friends Looking forward to our next visit!"

I’ve always loved going swimming but it’s not something I would want to do by myself. I usually need someone there with me to keep me busy enough not to worry about the bubbling anxiety waiting. Making a mistake that might have me singled out or worrying about people watching me.The ability to write exactly what I wanted during the visit was so helpful. Initially I was a little nervous about writing a short note about my anxiety and my son’s struggles with being overwhelmed by loud noises, new places and lots of people, but in hindsight it was amazing not to have to worry about trying to mask how I was feeling. It was also a relief having them know my son may need some extra attention during the tour.Thanks to being able to answer those two simple questions in the Cérge app, and letting the centre know when to expect us, checking in and being welcomed was a very comfortable experience. I was greeted, by name, by a calm and friendly staff member and shown around the spacious new aquatic centre. I believe he also targeted some information towards me such as letting me know their usual quieter times.At the end of the tour my son and I had a great little swim around and Aaron even wanted to explore one of the other pools he had seen during our tour which I definitely consider a win as he doesn’t love stepping outside of his comfort zone.After this experience I feel much more comfortable with the idea of going swimming at the centre on my own as I feel I could do so knowing the ins and outs of the pool area and the process of entering the facility. I would definitely recommend the Cérge app for people that have any requirement for more targeted assistance. Even if it is just needing someone to help you feel at ease in a new and overwhelming environment.

We are teaming up with a new initiative, Cèrge. Cèrge is a communication platform created to help people with disability connect with local businesses in their community. It allows organisations to provide personalised services to customers with disability with the aim of reducing the fear, anxiety and discrimination individuals with disability go through as customers. Through the Cèrge app, the customer can notify participating businesses that they will be arriving, giving staff awareness of what the customer may need while in the store.Today our customer visited the Swan Hill Leisure Centre to have a shot of basketball with his support worker. He was able to communicate through the app notifying the leisure centre of when he would be arriving and what he was planning on doing while there. Upon arrival he was met by staff who greeted him by name creating a welcoming experience for our customer. This helped our customer feel very comfortable and he went on to enjoy a shot of basketball while there! Swan Hill Leisure Centre Cérge Cérge Community

Heidi greeted me with a huge wave as I arrived and I felt a sigh of relief leave my body. It was like I was running into an old friend.  She smiled and grabbed the medications I required.She faced me whilst talking which was my request so that I could lip read. She asked me to teach her some signs and I did, even though I’m a bit rusty myself hehe! Not everyone signs and not everyone lip reads either. I was so scared, I felt a bit raw and vulnerable walking in. I didn’t want a fuss or to feel like a bother like I have so many times before. It was a lot of trust to put into the Cérge app and I wasn’t sure it would truly help. I have to say though I am very surprised. I left Amcal Wilsonton feeling like my friend had just served me and honestly, truly cared. What a difference. It’s one of those things, I didn’t know how much I missed feeling “normal”, how much I craved just feeling like a regular customer who is heard and seen. Thank you Cérge, thank you Amcal Wilsonton, I’m telling all my friends! Incredible.