Cérge

Life with a toddler is hard, life with a toddler with a disability with limited communication and mobility requires lots of planning and organisation.   

Today I introduced my little mate Jackson to Cérge at Aquapulse (Werribee, Melbourne). Jackson has a genetic disorder called IQSEC2, this means Jackson has intellectual and gross motor delays and associated Epilepsy.    

He is currently in a wheelchair, non-verbal and has frequent seizures, including where he will drop all of a sudden and sometimes he will stop breathing for a short period of time. This can be something we are use to and also something that can be terrifying depending on the situation.    

The anxiety associated is really hard, we need things to move fast and seamlessly to make things as best as possible for us as a family. We wanted to take Jackson to the Aquatic Centre but as you can imagine going swimming and the risk of a seizure is pretty scary.    

We used Cérge to let the staff at Aquapulse know we would like to get through as quickly as possible as his seizures can mean our trips are cut short. When the staff saw us in the entry they waved us through as quickly as possible, streamlining the front access, payment and wristbands.    

Having never been to Aquapulse before we were unaware of the need to organise lockers at the front desk, when we approached a staff member near the lockers for help she immediately retrieved the wristband we needed with no need to pay (despite them usually incurring a $2 fee!) to ensure quick access for us to get Jackson in the pool.    

This made a HUGE difference. Sometimes by the time we get in and organised it can be 20mins already gone. Making this process fast for us meant he was able to enjoy some time in the toddler pool, warm pool and had an absolute ball!    

All you ever needed any as a parent or caregiver is to see that smile, you know the one where their eyes glisten as their mouth moves as wide as it can. Where you know they are in utter excitement and ecstasy in that very moment.    

Seeing him made me soooo very happy. Everything in the world stops when your know your kid is happy.   

Jackson, being a tall 3 year old, is too big for standard baby change tables located in the All Gender Disabled and baby change stalls. The All Gender showers had a long bench down one side that had more than enough room for Jackson to lay down to get changed and plenty of room left in the stall for Jackson and even enough room to turn his wheelchair around.    

This trip was an absolute success for us, and we will be back! I can’t believe things can be soooo much easier just by having a staff member a step ahead.   
   
 

I made a trip down to White’s Supa IGA on Monday, the newest partner addition to the Cérge app and wanted to share my experience.The whole team were fantastic I sent my notification with a request to please lower the music and the lights, I was lucky enough to have my peer worker with me for the day so I didn’t need as much assistance as I would if I was to go shopping alone.I checked in as we parked the car and by the time we got to the front door a manager was there to welcome us by name, how fancy!They had turned the music off completely which was lovely however due to the building being owned by Stockland they were unable to adjust the lights as it is seen as a health and safety issue. As they are now the store is well lit but certainly not anywhere near as bright and glaring as the big box stores. They are working hard to find a solution for this whilst still keeping everyone safe, so hopefully it will be an available option in the future.We also discussed what assistance is available for those of us shopping solo and I was pleased to hear that they will do everything they can to help, including having a team member shop with you if they are free.The manager gave us a tour of the store, asking questions about my dietary requirements and what I enjoyed eating then pointed out specific isles that met my needs. I know for some people this can be triggering but please know that I am sure my boundaries would have been respected if I had declined to answer.After confirming that everything was ok, she left us to shop in peace with the reassurance that if we needed anything all we had to do was ask a team member.Their product range is extensive with many unique options that you don’t see or are difficult to find in larger stores, including a wide variety of gluten free and vegan products, some of which I had never seen before and I will be going back to purchase later.I did not need my stick on Monday but the isles are wide and easily accessible for those of us using mobility aides.All in all a wonderful shopping experience and great to see local businesses joining Cérge so we can support them in return.

Heidi greeted me with a huge wave as I arrived and I felt a sigh of relief leave my body. It was like I was running into an old friend.  She smiled and grabbed the medications I required.She faced me whilst talking which was my request so that I could lip read. She asked me to teach her some signs and I did, even though I’m a bit rusty myself hehe! Not everyone signs and not everyone lip reads either. I was so scared, I felt a bit raw and vulnerable walking in. I didn’t want a fuss or to feel like a bother like I have so many times before. It was a lot of trust to put into the Cérge app and I wasn’t sure it would truly help. I have to say though I am very surprised. I left Amcal Wilsonton feeling like my friend had just served me and honestly, truly cared. What a difference. It’s one of those things, I didn’t know how much I missed feeling “normal”, how much I craved just feeling like a regular customer who is heard and seen. Thank you Cérge, thank you Amcal Wilsonton, I’m telling all my friends! Incredible.

You know those times when you think you have it all under control as a mum and then your kids yell “plot twist!"
That’s exactly what happened for me on Sunday when visiting Nambour Aquatic Centre.
I was prepared, I have two ASD kids so we have used the Cérge app before and it’s fantastic. I have one child who has big emotions and doesn’t like too much stimulation and one who runs
off….. a lot.
Going out gives me anxiety. Huge anxiety. Because not only do I have to manage the “mum load” of making sure they are fed and watered and happy. I also have to account for any change, any situation and pre empt as much as I humanly can.
It’s hard. Very hard.
I showed both children the Visual Story, Photos and Sensory Guide, so we were all prepared with how everything looks and feels. I notified through the Cérge app and let the staff know when we would be arriving and that I have a child that runs and a child that may need space.
We were rocking.
Swimmers, towels, snacks and Cérge and we are set! I actually felt ahead of the game for once.  We arrive at the pool and check in seamlessly, the staff are amazing, helpful, inclusive and friendly. We are excited!  We head for our swim. Well, whatever could go wrong for me did.
One child ran, the other was over stimulated and the emotions were at an all time high. I want eyes on my son near a pool at all moments and I couldn’t find him. Panic mode.
Now, I’m not going to lie and say this never happens. It does. A large part of my life is trying to be the best mum I can possibly be and meet my children’s needs. But sometimes that can’t be met by one person.
We have left places feeling humiliated, shamed, unwelcome and upset and none of these feelings are any I want my children to feel. Today was different though, the staff knew who I was and our needs through Cérge they were able to assist calmly, navigate what we needed quickly and quietly and lead with pure
professionalism. What I noticed was because the staff were exceptional and inclusive the patrons followed suit.
Never, ever, have I experienced this before. They offered a quiet room for my daughter and the facility has a latched gate at the entrance which has supervision also so I knew my son was safer. They loved the slides and my son probably went down a thousand times! Lucky they don’t charge per ride! Wow.
In the past we would leave with hysterical kids and I would cry in the car wondering if I will ever leave the house again. Not today though, today I had a team, today I was part of a village. I was a person trying to get through something hard with extra help and support. Today I didn’t feel like a loser being judged as a failure. That’s a first.  Nambour Aquatic Centre, you are amazing. Thank you.
……..And of course thank you Cérge.
Life changing! Literally

I use a mobility scooter for all of my outings so it is vitally important that I have access to information about different places. I can’t tell you the amount of times I get caught where I can’t access a grocery aisle, a corner store, a clothing store or a chemist. Things like the size of the aisles, the doorways can all mean I can’t access them. Not to mention not being able to reach things on shelves. My partner is also my carer and so when I heard about Cérge we had a chat and decided to see what all the fuss was about. I don’t like to make a bother for people, I just want to be able to access the places I need and want to enjoy my life. Seeing Mudgereeba Aquatic Centre on the Cérge website was great, so close to me and a place I wanted to visit for hydrotherapy. My partner and I sat and looked through the Visual Story and Access Guide to make sure I was, 1. Find suitable parking 2. Able to get inside from the carpark 3. Get in the doorway 4. Have somewhere I can get changed 5. Get into the pool 6. Water at a temp that is ok for my hydrotherapy 7. Enjoy myself with minimal anxiety After looking through the tools I felt happy and equipped with the information to be able to attend. Abby was the staff member who greeted me when I arrived and she was so welcoming and helpful. She was a breath of fresh air and had the whole situation under control and we felt very at ease. I use pool noodles and enjoyed such a great swim. You need to take your own equipment to the pool which is pretty standard. We felt very accomplished and I would love to return to this pool! It’s so good for my body to move but it’s even better for the mindset! I really enjoyed myself, thank you everyone :)

My life story is a long one and I don’t need to go into all the details, but I have been diabetic from aged 7. I had a sub arachnid haemorrhage (SAH) two years ago. I have an ABI which caused a stroke and I still don't have full mobility. Because of this I tire quickly when walking. I'm immune suppressed from a double transplant of kidney and pancreas therefore I get anxiety with big crowds. I won’t even start with the 3 emergency c sections. That’s for another day! Due to my immunity choosing adventures outside is always good for me, fresh air is a good medicine and less germs. However,I need to plan my days around my mobility and the access to a venue. I use a walker at times, big days I use my wheelchair. I make the most out of life and enjoy trying new things. It can just be exhausting trying to plan for support workers, access, people staring, people assuming. I also have trouble finding the right words and need people not to slowly talk to me like I’m stupid but also not talk at me at a million miles an hour. Just please have a conversation with me and give me a chance to respond. The world can be so fast and especially when trying to process new information. I saw the social media stories about Cérge and wasn’t sure whether it was for me. I checked it out online and asked some questions to get clarity from the Cérge team. I don’t like to stand out but I do like to get involved in life. I liked that Cérge seemed like a wide variety of people were using it and that you could literally just access the information and go about your day. I like that I’m in control. A support worker is completely different to using Cérge.Using Cérge is like being able to support myself fully because I have the information before I go and then use support for the things I’ve already decided I’d like to do not the other way around. I browsed through the different venues and started to feel very excited, there is an access guide and visual story plus a virtual tour. I get more information about the venue online than even being at the venue itself and missing stuff hahah I chose to visit Lone Pine Koala Sanctuary. What a day. Wow! I find it really hard when ppl look at you and see the disability and treat you different. Here I didn't feel that. I felt like everyone else enjoying the animals and the nature. Oh the nature! I saw so many koalas, saw a Tassie devil growl…. And yawn. They aren’t terrifying at all! Hehe I got to feed kangaroos and wallabies. The paths are awesome, heaps of tables for me to wheel up to! We’re cruising along and I saw the dingos being walked. I got to get up close and personal as the handler said it was good training for them to be around wheelchairs. The encounter with the Dingo was pure timing and chance. My lucky day :) Cérge, thank you! Lone Pine Koala Sanctuary, thank you. I am so full of adventure and life and feel excited about all the venues I can now try out and add to my life and LIVING! YES!