Cérge

Truthfully, as a parent of a child with ASD it takes planning. The mental load can often be the thing that breaks me. Thinking, planning, preventing, pre-empting and the plot twists. 
For me, it’s all about calculating his level and where he is at, watching as things add to his load and watching him relax as things become less. It’s a huge mental game at the best of times. I just want the best for my son. 

I guess usually the thought of a loud pool with the echoing of excited children and splashing would be something I wouldn’t often consider, however I know that water is great for him and he enjoys it. For us to have a success it’s all about the layering and expectations. 

Layer 1, talk to him about what we are doing today and give him a slower morning and breakfast. 

Layer 2, use Cérge as I was able to show Seth the Keilor East Aquatic Centre on the Visual Story, I showed him the car park, the entrance, the reception and the pools. 

Layer 3, prepare him to leave and explain to him I am letting the pool know we are coming. I put in the “Must Know” that it is VERY important not to bombard Seth with long conversations and questions but he does love a “hello” and smiles. 
This part is SO important for me because it’s this part that will get us to Layer 4 and a home run for the outing or it will take us all the way back to zero. 

Being able to share this information meant that I was much more confident in getting through reception with a happy child. Often staff try to do the right thing by talking to him because they don’t have the insider knowledge to say “please don’t”.

When we arrived at Keilor East, we were greeted and efficiently moved through the payment process. Everyone was pleasant. it not over the top which was perfect. Yes they were at tad busy at the counter upon arrival and yet they were lovely to deal with. 

The staff explained swimming lessons were occurring but there was an outdoor pool that was quite and not too many people so we could enjoy a swim without too much noise. Layer 5 done for me! Explained, efficient and quiet place! 
My anxiety was so much less on this outing just because I felt like I had back up, like a silent mum army behind me. 

I’m so glad we decided to attend again and used Cérge, we had a great experience and look forward to many more visits like this one! 

We ended up home, fulfilled and smiling! Home run! 

Thank you

"My son Henry is autistic and has very poor proprioception and muscle tone so he doesn’t go to a lot of places often because it’s usually far too much sensory input for him. His “wet noodling” around the place can crash into things etc. This causes extreme frustration and embarrassment for him and sometimes staff can be rude at times like this or not know how to help. It’s frustrating and my heart breaks for my son.I have to say I was pretty nervous going to White Ridge Farm with my son. I wasn’t sure how he would cope, how the staff would be and to be honest, if it would just be a disaster. We knew @cerge was at the farm so we were keen to give it a go as we have heard great things.The night before I read through the Visual Story on the app with the children and they felt as though they knew what to expect and were very excited. This was an amazing resource and certainly helped my own nerves because I new everyone had seen photos of the venue along with sights, smells and other possible sensory interactions.I notified White Ridge Farm on the app 60 mins before our arrival about our must knows which were areas and activities that are less noisy/busy with fewer people and plenty of space for Henry’s unique walking style and that we are bringing along the pram for him to sit in when he needs to.I received notification that they had read and acknowledged our requirements within 10 minutes of sending it. Talk about service!I booked our tickets online prior to ensure that we wouldn’t have to spend too much time at the entrance buying them where Henry would get anxious before our day even started. That process was great the staff member at the counter acknowledged that we were with Cérge and took extra time to go into further detail about the farm, directed at the children, about some of the sounds/smells/textures they may come across on our journey and gave them a map to help them orientate. This was great and made us feel like we were appreciated and not a bother.Once inside, the area was vast and there was PLENTY of the space that we needed on the paths. The staff were very friendly and answered every single one of Henry’s questions (and this kid asks a LOT of questions ). They also reiterated some of the strange ways his hand may feel as he feeds the animals, which is something I hadn’t even considered so thankful to them for that!Being able to take our own food and have a picnic was perfect as it’s always so hard to find foods that Henry will eat based on texture and we generally avoid places where outside food is prohibited.I would definitely recommend it to any families wanting a great day out! It was so great! The ability to let the farm know our situation through Cérge prior to arrival, the Visual Story to prepare and the amazing staff at Whites Ridge Farm. What a great day! I can’t wait to go out again and usually after a day out I think I never want to go out again! 

As a speaker at this years AITCAP conference I already have a few nerves. I’m excited though and so grateful for the opportunity.

As a person with disability arriving at a new venue can be anxiety inducing enough. I use a wheelchair so step free entrances are something I look for, wider doorways, access to the car park.

The list goes on.

So when going to a venue for the first time, it can be really difficult and time consuming to find all the information I need just to access a venue and its facilities. One major component is seating, will there be a space for my wheelchair, will there be a space near the front now that I’m a speaker in the day.

This year the AITCAP conference have upped their game amazingly, they use the Cérge Companion site which has a visual story, up to date photos of all the areas, plus a list of sounds at each part of the venue. There is also reference to the car parking, each room and where they accessible carparks are so I know how to get to the venue with ease. This site has reduced so much anxiety for me because it feels alas if I’ve already been to the venue.

I also used the Cérge app to notify the venue on my arrival. Arriving at the venue I was greeted by Chris and given everything I needed for the day in regards to where registration is and the room I’m speaking in. I felt so welcomed and it really added to my confidence for the day ahead and getting on stage! Eek!

I am so happy the AITCAP conference have gone above and beyond with access and inclusion this year. I haven’t actually experienced that through type of inclusion previously and given the type of conference it is its great to see them leading the way alongside Cérge!
Makes me excited for the Paralympics in 2032 hahahaha

Here’s to a great day ahead!

You know those times when you think you have it all under control as a mum and then your kids yell “plot twist!"
That’s exactly what happened for me on Sunday when visiting Nambour Aquatic Centre.
I was prepared, I have two ASD kids so we have used the Cérge app before and it’s fantastic. I have one child who has big emotions and doesn’t like too much stimulation and one who runs
off….. a lot.
Going out gives me anxiety. Huge anxiety. Because not only do I have to manage the “mum load” of making sure they are fed and watered and happy. I also have to account for any change, any situation and pre empt as much as I humanly can.
It’s hard. Very hard.
I showed both children the Visual Story, Photos and Sensory Guide, so we were all prepared with how everything looks and feels. I notified through the Cérge app and let the staff know when we would be arriving and that I have a child that runs and a child that may need space.
We were rocking.
Swimmers, towels, snacks and Cérge and we are set! I actually felt ahead of the game for once.  We arrive at the pool and check in seamlessly, the staff are amazing, helpful, inclusive and friendly. We are excited!  We head for our swim. Well, whatever could go wrong for me did.
One child ran, the other was over stimulated and the emotions were at an all time high. I want eyes on my son near a pool at all moments and I couldn’t find him. Panic mode.
Now, I’m not going to lie and say this never happens. It does. A large part of my life is trying to be the best mum I can possibly be and meet my children’s needs. But sometimes that can’t be met by one person.
We have left places feeling humiliated, shamed, unwelcome and upset and none of these feelings are any I want my children to feel. Today was different though, the staff knew who I was and our needs through Cérge they were able to assist calmly, navigate what we needed quickly and quietly and lead with pure
professionalism. What I noticed was because the staff were exceptional and inclusive the patrons followed suit.
Never, ever, have I experienced this before. They offered a quiet room for my daughter and the facility has a latched gate at the entrance which has supervision also so I knew my son was safer. They loved the slides and my son probably went down a thousand times! Lucky they don’t charge per ride! Wow.
In the past we would leave with hysterical kids and I would cry in the car wondering if I will ever leave the house again. Not today though, today I had a team, today I was part of a village. I was a person trying to get through something hard with extra help and support. Today I didn’t feel like a loser being judged as a failure. That’s a first.  Nambour Aquatic Centre, you are amazing. Thank you.
……..And of course thank you Cérge.
Life changing! Literally

"As I have hereditary nerve deafness I would normally feel a little bit anxious about going to a brand new venue. I would normally feel frustrated if there was a communication barrier, or hopeless at having to rely on my husband to communicate for me.I have a two year old who is also Hard of Hearing and I want her to be able to learn how to communicate and see inclusion not frustration.In past experiences, if the first person I deal with has a thick accent, I can be there for ages with us trying to work each other out. It’s time consuming, frustrating and sometimes embarrassing for us both. I had put in my “Must Know” that I needed the customer service person to not have an accent please.When I arrived the first person who served me had an accent. I pointed to the sign and said Cérge app, and he immediately grabbed the Manager as they knew I was arriving and that was their plan.Other times, I normally just divert to my husband and let him talk for me which is irritating and not sustainable long term as I want to be able to communicate for myself.When we arrived at Stromlo Leisure Centre, the Manager, Bianca looked after us. She spoke clearly to me, introduced herself, showed us where to go, and went through what the different pools were.It was such a nice feeling to feel like we were looked after and not a bother. We were able to get what we needed seamlessly. Bianca was professional and kind.We would certainly normally visit these kinds of venues as we do take our daughter to swimming lessons and as mentioned above, if there is a communication barrier, I let my husband talk for the both of us instead.If Cérge was more available, it would certainly make things easier for our family, especially in areas where it's normally a noisy environment.We had a wonderful time at Stromlo and it is a great place, so many things to do! I felt quite happy leaving and would happily drive out of our way to come here again for the simple fact I felt included.I would love for Cérge to be in some local Canberra cafes, even the local clubs (Vikings, Southern Cross Club, etc) that would make so much difference to me and my friends Looking forward to our next visit!"

“I don’t need it easy, I just need it possible" – Bethany Hamilton (Disabled Pro Surfer).  

For a while now I have been trying my best to have new experiences but sometimes due my disability which makes me a bit unsteady on my feet (stairs can be a bit tricky) and being touch sensitive to some sensations, sticking with the activities and places I know can be easier and pushing myself into the unknown can be tough. 

When I saw that Cérge was launching on Aquaduck Sunshine Coast and I couldn’t believe it. I had seen the Aquaduck before and wanted to go, but was unsure about it all. Cerge made it possible.

Cérge has a virtual tour of the Aquaduck experience so I was able to virtually walk on board, check out the seats, look how many stairs there were and prepare. 

This made my whole experience so much better. I had very little anxiety about trying something new because I could see everything and had a complete mind map of what was ahead. I knew the areas I would need support for the stairs, I could see how the seats were organised. I knew where I wanted to sit. I could see the location of the boat driver and other passengers and all of this combined made my anxiety very little. 

My Support Worker, Mel and I had a wonderful time on board. I am looking forward to using the app more often to help us communicate to the business what we need before we arrive which just saves time and make the whole experience far more inclusive. 

I’m very excited that Cérge is now available at such cool and fun places! It makes me want to try new things that I never usually would! It opens up all sort of possibilities for me that I may not have had the courage to try before.

**********
This Story of Inclusion made possible by the Queensland Government's Accessible Tourism Enablers Grant and the Access Accelerator Program, a partnership between Spinal Life Australia & Cérge.