Cérge

Life with a toddler is hard, life with a toddler with a disability with limited communication and mobility requires lots of planning and organisation.   

Today I introduced my little mate Jackson to Cérge at Aquapulse (Werribee, Melbourne). Jackson has a genetic disorder called IQSEC2, this means Jackson has intellectual and gross motor delays and associated Epilepsy.    

He is currently in a wheelchair, non-verbal and has frequent seizures, including where he will drop all of a sudden and sometimes he will stop breathing for a short period of time. This can be something we are use to and also something that can be terrifying depending on the situation.    

The anxiety associated is really hard, we need things to move fast and seamlessly to make things as best as possible for us as a family. We wanted to take Jackson to the Aquatic Centre but as you can imagine going swimming and the risk of a seizure is pretty scary.    

We used Cérge to let the staff at Aquapulse know we would like to get through as quickly as possible as his seizures can mean our trips are cut short. When the staff saw us in the entry they waved us through as quickly as possible, streamlining the front access, payment and wristbands.    

Having never been to Aquapulse before we were unaware of the need to organise lockers at the front desk, when we approached a staff member near the lockers for help she immediately retrieved the wristband we needed with no need to pay (despite them usually incurring a $2 fee!) to ensure quick access for us to get Jackson in the pool.    

This made a HUGE difference. Sometimes by the time we get in and organised it can be 20mins already gone. Making this process fast for us meant he was able to enjoy some time in the toddler pool, warm pool and had an absolute ball!    

All you ever needed any as a parent or caregiver is to see that smile, you know the one where their eyes glisten as their mouth moves as wide as it can. Where you know they are in utter excitement and ecstasy in that very moment.    

Seeing him made me soooo very happy. Everything in the world stops when your know your kid is happy.   

Jackson, being a tall 3 year old, is too big for standard baby change tables located in the All Gender Disabled and baby change stalls. The All Gender showers had a long bench down one side that had more than enough room for Jackson to lay down to get changed and plenty of room left in the stall for Jackson and even enough room to turn his wheelchair around.    

This trip was an absolute success for us, and we will be back! I can’t believe things can be soooo much easier just by having a staff member a step ahead.   
   
 

My son lives with Autism and it’s so important for him to fill his bucket of certain sensory needs. In today’s case that bucket was the need to gently pat animals.As a mum, I like to make sure Seth has a mix of exposures, experiences and in an environment that is conducive to him feeling safe to explore and learn. Obviously with animals and excitement this can be tricky to manage and you really need the right place.Edendale Community Environment Farm is this place. Just Awesome!New places are always nerve racking, I’m not going to lie. I never, ever know how the day will go and it can be a challenge.However, I’ve used Cérge at a pool and I trust that if Cérge is there the staff care. It just makes me feel so much more at ease.When we arrived at Edendale they were so engaging and happy to see us, they were great with Seth too. No crappy small talk trying to get him to like them, just lets go see the animal later and have some fun.We saw chickens, roosters, ducks, goats, alpacas, llamas and so many more! It was truly so very cool! Some were super excited to meet us and very keen on some yummy treats.Seth had a full bucket of animal love and I had a full bucket of mum love!So much better than a day of mum guilt.Today was a good day!

"As I have hereditary nerve deafness I would normally feel a little bit anxious about going to a brand new venue. I would normally feel frustrated if there was a communication barrier, or hopeless at having to rely on my husband to communicate for me.I have a two year old who is also Hard of Hearing and I want her to be able to learn how to communicate and see inclusion not frustration.In past experiences, if the first person I deal with has a thick accent, I can be there for ages with us trying to work each other out. It’s time consuming, frustrating and sometimes embarrassing for us both. I had put in my “Must Know” that I needed the customer service person to not have an accent please.When I arrived the first person who served me had an accent. I pointed to the sign and said Cérge app, and he immediately grabbed the Manager as they knew I was arriving and that was their plan.Other times, I normally just divert to my husband and let him talk for me which is irritating and not sustainable long term as I want to be able to communicate for myself.When we arrived at Stromlo Leisure Centre, the Manager, Bianca looked after us. She spoke clearly to me, introduced herself, showed us where to go, and went through what the different pools were.It was such a nice feeling to feel like we were looked after and not a bother. We were able to get what we needed seamlessly. Bianca was professional and kind.We would certainly normally visit these kinds of venues as we do take our daughter to swimming lessons and as mentioned above, if there is a communication barrier, I let my husband talk for the both of us instead.If Cérge was more available, it would certainly make things easier for our family, especially in areas where it's normally a noisy environment.We had a wonderful time at Stromlo and it is a great place, so many things to do! I felt quite happy leaving and would happily drive out of our way to come here again for the simple fact I felt included.I would love for Cérge to be in some local Canberra cafes, even the local clubs (Vikings, Southern Cross Club, etc) that would make so much difference to me and my friends Looking forward to our next visit!"

I once loved swimming and going to the pool but it’s been about 7 years since I’ve been back to a pool after my conditions have deteriorated.I felt extremely anxious about what to expect from the staff, the possibility of having to answer multiple personal questions, and the high chance of shutting down (dissociation) due to sensory overload or PTSD triggered. The fact I hadn't been to a public pool with my Assistance Dog (Buddha) in a very long time because of past experiences only added to my high anxiety before arriving.I logged into the app and notified Whitlam Leisure Centre that I was on my way, I typed my “Must know “ info that I can get overstimulated and that I had a Buddha. I explained I like to communicate calmly and not be drilled with questions about me or Buddha.On arrival we were greeted friendly by staff and then given a tour around the centre by Ernest, who answered our questions and showed all the accommodations available to us, such as quiet spaces away from others.For the first time, EVER, there were no questions asked about my disability or my Assistance Dog! Absolutely blew me away! As I said with Cérge, I had let staff know before arriving that I have multiple mental health conditions and would have my Assistance Dog and carer with me, that I struggle interacting with strangers and that I hate being asked personal questions. Knowing they knew this, my fears about what might happen lessened to a manageable level.The impact Cerge has made for me after today is indescribable!We walked out of the centre and were deeply overjoyed that I was able to stay at a public pool without issues and for longer than expected! I felt like, for the first time, I could happily enjoy a swim without being disturbed or people trying to interact with my Assistance Dog while I was in the water.I am relieved, happy and empowered

We are teaming up with a new initiative, Cèrge. Cèrge is a communication platform created to help people with disability connect with local businesses in their community. It allows organisations to provide personalised services to customers with disability with the aim of reducing the fear, anxiety and discrimination individuals with disability go through as customers. Through the Cèrge app, the customer can notify participating businesses that they will be arriving, giving staff awareness of what the customer may need while in the store.Today our customer visited the Swan Hill Leisure Centre to have a shot of basketball with his support worker. He was able to communicate through the app notifying the leisure centre of when he would be arriving and what he was planning on doing while there. Upon arrival he was met by staff who greeted him by name creating a welcoming experience for our customer. This helped our customer feel very comfortable and he went on to enjoy a shot of basketball while there! Swan Hill Leisure Centre Cérge Cérge Community

Today I met a new friend named Cérge……The Cérge app worked perfectly and it’s a great service… even my Support Worker was impressed… lolI arrived at Peregian Beach IGA to meet Cérge and do a little shopping, having advised them earlier I was on my way.As I use a wheelchair when in shopping centres due to balance issues, I had my Support Worker with me on this visit.At this time of the year, people are usually tense and somewhat short-tempered, so yes, I do avoid shopping centres approaching Christmas season… funny that Christmas brings out the worse in people at times (lol), so I hoped today using Cérge would ease some anxiety and I could have an enjoyable shopping experience.Unfortunately one small concern. The footpath leading to IGA’s front door was completely blocked with trolleys (who didn’t quite make it to the trolley corral) requiring my Support Worker to round them up and send them “home” so I could keep wheeling past.Once inside the store I was greeted by the lovely Amber who couldn’t have been more helpful, asking what I needed to make my shopping experience the best possible and assuring me that she would be happy to assist me in any way I wished.When I explained I had my Support Worker with me for assistance, Amber informed me she was happy to help in any way if needed.I did tell Amber about the wayward trolleys and she apologised and said she would advise management about that issue, which was the perfect response!At the checkout Jake did a great job in processing my groceries and he actually talked to me rather than my Support Worker, which I really appreciated as all too often, people talk over you when you are in a wheelchair… good job Jake!As it is approaching Christmas, it’s understandable there is a little more product in the aisleways than usual, but everywhere was accessible. As I was departing the store, there was one section where my wheelchair barely fit between the wall and some flowerpots, but a staff member ensured I could fit through and was prepared to move the flowerpot if needed, much appreciated.On my way to the car I noticed all the trolleys were happily in their paddock, so perhaps Amber followed up?My SW is a needed support because Cérge isn’t everywhere yet, but certainly Amber and Jake (particularly Amber who said she would be happy to accompany me and assist me with my shopping) gives me total confidence that I wouldn’t need my SW at an IGA store now that Cérge is “on duty”.All in all, a wonderful shopping experience… and I’ll certainly be back again for the free coffee